RESOURCES

The following list of resources has been thoughtfully curated over many years with significant help from anti-ableist, anti-racist organizational leadership consultants at Kindred Leaders. https://www.kindredleaders.com The PAC acknowledges, with deep and abiding gratitude, the extensive labor, wisdom, and groundbreaking contributions made by this Black/Woman owned and led organization. Our community is greatly enriched because of thousands of hours of uncompensated and unseen labor so generously given.

The resources below are a non-exhaustive list of resources to get started on your journey to understanding how to ensure people with developmental disabilities and their families feel a sense of belonging in your community. Whether you’re an elected leader or a disability advocate fighting for yourself or your loved one to be seen and centered, it is important to know that there is a world of information and tools to help shape an anti-ableist, anti-racist community where we all can thrive. If you know of a resource you would like to see included, please email it directly to ddallypac@gmail.com.


Why It Is Important to Eliminate Restraint and Isolation of Children with Disabilities
(Disproportionately Used Against Children of Color)
Washington State Specific Report https://disabilityrightswa.org/reports/restraint-and-isolation/
https://www.seattletimes.com/seattle-news/times-watchdog/special-education-school-accused-of-harming-kids-barred-from-new-admissions/
Dr. Ross Greene on ending restraints and seclusion in schools https://livesinthebalance.org/


What to Do Instead of Restraining and Isolating Children: Ending Behaviorism in Schools and Other Services to Ensure Safety and Belonging for Disabled Children

Dr. Mona Delahooke on the importance of co-regulation (Beyond Behaviors) https://monadelahooke.com/

Dr. Alfie Kohn https://www.alfiekohn.org/ (Punished by Rewards)

Dr. Barry Prizant https://barryprizant.com/ (Uniquely Human)

Rhiannon M. Kim and Alex Chevron Venet on Unsnarling PBIS and Trauma Informed Education https://journals.sagepub.com/doi/abs/10.1177/00420859231175670?journalCode=uexa

https://autisticadvocacy.org/2024/05/beyond-coercion-and-institutionalization/

https://autisticadvocacy.org/policy/briefs/interventions/

A manual on how to match and handle the energy of an autistic person https://www.store-autismlevelup.com/product-page/energy-the-framework-tools-strategies-logic-to-support-regulation?fbclid=IwY2xjawFkOfxleHRuA2FlbQIxMAABHYoXvepsJCLT6ohCAttGEq1G_SYr1HAD5VQ2a1EcMp-2yIUnz8ytEHCkrw_aem_qO1gSKJxSfPgut53hvieqg
https://www.autismlevelup.com/?fbclid=IwY2xjawFkOb5leHRuA2FlbQIxMAABHWvPWsBRADtNFcVTj8Rb-LW_lnewsjte06plLslVXr6pSFWQLXsntWIU2w_aem_hhTPsVpfRkPN9bfNQZb7Jw#home

A step by step guide to being an ally to autistic people (centering autistic people): https://drive.google.com/file/d/1f2xiSWjgMHbOGyXP0qkNnJqmkL2QR9Rq/view?usp=sharing


Meaningfully Including Developmentally Disabled Children In Classrooms

Dr. Moore gives step by step instruction on how to ensure meaningful belonging in general education classrooms and academic progress for children with developmental disabilities
https://www.drshelleymoore.com/

On the importance of belonging and meaningful inclusion at school: Normal Sucks by Jonathan Mooney https://www.jonathanmooney.com/books


Effectively Supporting Disabled People Experiencing Mental Health Crises/ Lack of Services for Dual Diagnoses

https://autisticadvocacy.org/wp-content/uploads/2024/05/BSP-PL-9.-Appendix-B-tagged.pdf
https://www.kuow.org/stories/washington-is-sending-youth-in-crisis-to-out-of-state-boarding-schools-taxpayers-pick-up-the-tab
https://www.disabilityintersectionalitysummit.com/arianne-garcia-increasing-resources-for-autistic-women-and-people-of-color/


Centering Disabled Voices In Advocacy, Care Work, and Community Living

Alice Wong’s Disability Visibility Project https://disabilityvisibilityproject.com/book/dv/
Please see also Alice Wong’s Access Rider for creating accessible events. (Always give citations and credits any time you use someone’s labor)
https://docs.google.com/document/d/100E93tnP4y7mMxAxezWZUls7E2nOfP-eqcyGO761Xy0/edit

See also: ADA30 In Color: No Justice for Disabled Native People https://disabilityvisibilityproject.com/2020/07/19/ada-30-no-justice-for-disabled-native-people/

There really aren’t any “special” needs https://youtu.be/kNMJaXuFuWQ?si=MCIOsxyuzHe7n33L

Avoiding using disabled people as “inspiration porn” (objectifying disabled people for the benefit of non disabled people) https://www.ted.com/talks/stella_young_i_m_not_your_inspiration_thank_you_very_much?utm_campaign=tedspread&utm_medium=referral&utm_source=tedcomshare

Explaining the social model of disability https://www.youtube.com/watch?v=7r0MiGWQY2g

Outcomes from self-directed lives must be the measures of success, rather than the focus on person centered planning and creating institutional like settings in the community (person centered planning is usually done by white, non-disabled people who benefit from making money for writing the plan but are not invested in or held accountable for ensuring quality outcomes for the people being planned for) https://autisticadvocacy.org/wp-content/uploads/2012/02/KeepingthePromise-SelfAdvocatesDefiningtheMeaningofCommunity.pdf

The Disability Experience; Working Toward Belonging by Hannalora Leavitt https://www.orcabook.com/The-Disability-Experience

We’re Not Broken, Changing the Autism Conversation by Eric Garcia https://neuroclastic.com/book-review-were-not-broken-changing-the-autism-conversation-by-eric-garcia/

Lydia X. Z. Brown on Racism and Ableism https://www.amazon.com/dp/0997504501/ref=cm_sw_r_cp_api_3XfszbDDTXZJS and We Can’t Address Disability Without Addressing Race: https://learnplaythrive.com/we-cant-address-disability-without-addressing-race/

Decriminalizing disabled people: Decarcerating Disability by Liat Ben-Moshe https://www.amazon.com/Decarcerating-Disability-Deinstitutionalization-Prison-Abolition/dp/1517904439/ref=tmm_pap_swatch_0?_encoding=UTF8&qid=&sr= *See especially the discussion on what constitutions “normal" beginning on page 78, highlighting the fact that just because someone lives in the community does not mean they are truly free from surveillance, segregated settings, management, or governance.

Crip Kinship, The Disability Justice in Art Activism of Sins Invalid, by Shayda Kafai https://arsenalpulp.com/Books/C/Crip-Kinship

Disability Pride: Dispatches from a Post ADA World by Ben Mattlin https://www.penguinrandomhouse.com/books/676271/disability-pride-by-ben-mattlin/

The Future is Disabled by Leah Lakshmi Piepzna-Samarasinha https://arsenalpulp.com/Books/T/The-Future-Is-Disabled

Being Heumann, An Unrepentant Memoir of A Disability Rights Activist by Judy Heumann https://judithheumann.com/being-heumann/

Crip Genealogies by Mel Y. Chen, Alison Kafer, Eunjung Kim, Julie Avril Minich https://www.dukeupress.edu/crip-genealogies


Understanding Tension in Disability Activism
Allies and Obstacles: Disability Activism and Parents of Children with Disabilities https://www.kingsbookstore.com/book/9781439916339

Occupying Disability: Critical Approaches to Community, Justice, and Decolonizing Disability by Pamela Block, Devva Kasnitz, Akemi Nishida, and Nick Pollard https://link.springer.com/book/10.1007/978-94-017-9984-3 (See Ch. 6 Occupying Autism: Rhetoric, Involuntarily, and the Meaning of Autistic Lives)

I Will Die On This Hill: Autistic Adults, Autism Parents, and the Children Who Deserve a Better World https://neuroclastic.com/book-review-i-will-die-on-this-hill/

Need for More Housing Options and Investments
Report to the legislature outlining need for community based housing https://www.dshs.wa.gov/sites/default/files/DDA/dda/documents/Housing%20fund%20priority_Oct%201%20Leg%20report_final.pdf


Need for Neurodiverse Affirming Housing Supports (physical structures are necessary but barriers to self-directed, disability positive supports must also be removed)
Just Care by Akemi Nishida https://tupress.temple.edu/books/just-care

Care Work by Leah Lakshmi Piepzna Samarasinha https://www.amazon.com/Care-Work-Dreaming-Disability-Justice/dp/1551527383


Washington State News About Caregiving Crises
https://washingtonstatestandard.com/2023/11/28/into-a-caregiving-void-family-members-fill-crucial-role-providing-long-term-care/

https://washingtonstatestandard.com/2023/11/27/ache-of-uncertainty-aging-parents-caring-for-disabled-adult-children-worry-whats-next/


Deaf and Hard of Hearing— ASL Interpretation is Critical— Ask Communication Preferences
https://www.disabilityintersectionalitysummit.com/dawn-welters-audism-the-silent-microaggression/


The Importance of Intersectionality in Disability Justice Work
Ten Principles of Disability Justice https://static1.squarespace.com/static/5bed3674f8370ad8c02efd9a/t/5f1f0783916d8a179c46126d/1595869064521/10_Principles_of_DJ-2ndEd.pdf

The time to ensure belonging, especially in the workplace, is now! (Spirit, space, and specifics!) https://coffeewithconvery.medium.com/mindful-waves-chris-hootens-journey-through-intersectional-neurodiversity-overcoming-barriers-95d2567ed9bf

Disability and Blackness explained: https://belonging.berkeley.edu/video-disability-blackness

Unmasking Administrative Evil by Danny L Balfour, Guy B. Adams and Ashley E. Nickels, citing “technical rationality” and state sponsored dehumanization of disabled people, especially disabled poor people (which is not isolated or accidental) https://us.sagepub.com/en-us/nam/unmasking-administrative-evil/book7111

Intersectionality: Many autistic people are also gender non-conforming: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8084764/pdf/10803_2020_Article_4626.pdf

https://www.disabilityintersectionalitysummit.com/anita-cameron-dis-2018-closing-keynote/

https://www.disabilityintersectionalitysummit.com/finn-gardiner-intersecting-selfhood-trans-autism-and-mental-health-disability/

Two-Spirit Explanation https://youtu.be/A4lBibGzUnE?si=GEq0_ZGhF-7Vv87p


Books for Kids
Just Ask: Be Different, Be Brave, Be You by Supreme Court Justice Sonia Sotomayor https://www.penguinrandomhouse.com/books/562056/just-ask-by-sonia-sotomayor-illustrated-by-rafael-lopez/

A Day with No Words by Tiffany Hammond https://www.adaywithnowords.com

My Whirling, Twirling, Motor by Merriam Sarcia Saunders https://www.apa.org/pubs/magination/441B250

Why Johnny Doesn’t Flap: NT is OK! https://us.jkp.com/products/why-johnny-doesnt-flap


History of Disability in the United States— Background Reading on Why Disability Justice Requires Us to Think Critically About How We Treat Disabled People Today
A Disability History of the United States by Kim Nielsen https://www.beacon.org/A-Disability-History-of-the-United-States-P1018.aspx

The Right to Maim by Jasper K. Puar https://www.dukeupress.edu/the-right-to-maim

The Ugly Laws; Disability in Public by Susan M. Schweik examining laws that aim to eradicate people with disabilities from public spaces https://www.amazon.com/dp/0814783619?tag=typepad0c2-20

Control: The Dark History and Troubling Present of Eugenics by Adam Rutherford https://www.amazon.com/Control-History-Troubling-Present-Eugenics/dp/1324035609